What is Visual Snow?

Visual Snow is a condition that appears similar to static on a television set, appearing across the entire visual field. Learn more ...

What are Floaters?

Floaters are a condition characterized by the appearance of specks, or spots appearing either intermittently, or constantly across the visual field. Learn more ...

What is Macular Degeneration?

Macular Degeneration is a visual disturbance that can result in loss of central vision, which often entails inability to see fine details, to read, or to recognize faces. Learn more ...

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Visual Snow Questionnaire responses returned

A communication to all Visual Snow sufferers participating in the London Questionnaire Study on Visual Snow

 

Thank you for your extraordinary interest in the London Questionnaire Study on Visual Snow! So far, we have been in contact with over 450 subjects, who expressed interest in participating in our research on this disabling condition.

We have emailed the documents for the study including two questionnaires to a large number of you. To date, however, only 67 have returned both documents. This is neither a representative sample of the 450 subjects nor is it sufficient to understand the condition Visual Snow in detail.

Direct participation from the Visual Snow community is extremely important for our goal to advance research and with it treatment of this problem. With this update, we would therefore like to invite all subjects to help us by returning their questionnaires as soon as possible. We believe that this study will gain significant important information on Visual Snow, but only if we are able to reach a substantial and meaningful number of participants.

Thank you again for your help and collaboration!

Professor Peter J Goadsby


 
Updated London Questions for VS and Monthly Donation Request for Research Funding
We would love for you to become a monthly donor and help us achieve our research funding goals. You can sign-up as a monthly donor here:

 

Please provide the following information within your email:

Name

Address

Date of Birth (Day/Month/Year)

Telephone number


1) Please make a brief statement that you are willing to be contacted for research. This is a European data protection issue. 

example:       
"Yes, please keep my contact details and you may contact me for research purposes."


2) Brief description of all symptoms you relate to visual snow syndrome. 
   

3) Date or age when your symptoms started.
 

4) Visual snow: what type (chose one):

-          black and white (i.e. only black dots on white background, white dots on black background)

-          clear (i.e. color of the background)

-          flashing (i.e. always white, brighter than background)

-          colored

-          all of these


5) Other symptoms (please only answer yes or no)


-          After images

-          Trailing of images in the vision

-          Blue field entoptic phenomenon (i.e. white squiggly lines moving pulsating on the blue sky)

-          Floaters in vision

-          Colored clouds or waves with eyes closed

-          Flashes of light

-          Impaired night vision

-          Sensitive to  light

-          Tinnitus

6) Have you ever been diagnosed with migraine or have you had a headache of moderate or severe intensity in the past? ( Please answer yes or no)


    7) Have you ever taken any illicit drugs in the past?





     
    Monthly Donor Form

    https://goo.gl/forms/XaHOGhL8JBCmN3Eg2


     
    New Article on Visual Snow

    A new article was published on Visual Snow. Please take a few moments to read. Awareness of our condition is always important as so few people still know about it. 


    https://www.theguardian.com/lifeandstyle/2016/aug/08/visual-snow-debilitating-eye-condition-doesnt-exist


     
    ************** News on a NEW VS Study out of London ********
    A NEW Questionnaire-based study has started for Visual Snow Research out of King's College. If you wish to participate you can send the information below to 

    This e-mail address is being protected from spambots. You need JavaScript enabled to view it , and you will receive an email back with information regarding the study! I've already received my email back from them! This is an ONLINE study, so it does not matter where you are located. They are looking for a large number of participants

     

    Please provide the following information within your email:

    Name

    Address

    Date of Birth (Day/Month/Year)

    Telephone number


    1) Please make a brief statement that you are willing to be contacted for research. This is a European data protection issue. 

    example:       
    "Yes, please keep my contact details and you may contact me for research purposes."


    2) Brief description of all symptoms you relate to visual snow syndrome. 
       

    3) Short description of visual symptoms in own words:

     

    4) Visual snow: what type (chose one):

    -          black and white (i.e. only black dots on white background, white dots on black background)

    -          clear (i.e. color of the background)

    -          flashing (i.e. always white, brighter than background)

    -          colored

    -          all of these


    5) Other symptoms (please only answer yes or no)


    -          After images

    -          Trailing of images in the vision

    -          Blue field entoptic phenomenon (i.e. white squiggly lines moving pulsating on the blue sky)

    -          Floaters in vision

    -          Colored clouds or waves with eyes closed

    -          Flashes of light

    -          Impaired night vision

    -          Sensitive to  light

    -          Tinnitus


     
    ************* EYE ON VISION FUNDRAISER TODAY ON FACEBOOK ************


    Please follow a moment to follow this link for information on our current fundraiser for Eye on Vision! This is a fun way to support EOVF and treat yourself to something gorgeous for yourself, child, spouse or loved one!!! This will be ending tomorrow, so please click now!!!


     
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