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Patients have begun to be recruited for the imaging study in London, England. Within the next two months we hope to see the first patients being scanned for the MRI study. Continued funding is asked for as we are just in the beginning phases or research and want very much to see it continue. It costs almost $80,000 USD per year to employ one research doctor. We would love for you to become a monthly donor and help us achieve our research funding goals. You can sign-up as a monthly donor here:
http://eyeonvision.org/donate-to-the-eye-on-vision-foundation.html
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A
communication to all Visual Snow sufferers participating in the London
Questionnaire Study on Visual Snow Thank you for your extraordinary interest in the London
Questionnaire Study on Visual Snow! So far, we have been in contact with over
450 subjects, who expressed interest in participating in our research on this
disabling condition. We have emailed the documents for the study including two
questionnaires to a large number of you. To date, however, only 67 have returned
both documents. This is neither a representative sample of the 450 subjects nor
is it sufficient to understand the condition Visual Snow in detail. Direct participation from the Visual Snow community is extremely
important for our goal to advance research and with it treatment of this
problem. With this update, we would therefore like to invite all subjects to help
us by returning their questionnaires as soon as possible. We believe that this
study will gain significant important information on Visual Snow, but only if
we are able to reach a substantial and meaningful number of participants. Thank you again for your help and collaboration!
Professor Peter J Goadsby |
We would love for you to become a monthly donor and help us achieve our research funding goals. You can sign-up as a monthly donor here:
Please provide the following information within your email:
Name
Address
Date of Birth (Day/Month/Year)
Telephone number
1) Please make a brief statement that you are willing to be contacted for research. This is a European data protection issue.
example:
"Yes, please keep my contact details and you may contact me for research purposes."
2) Brief description of all symptoms you relate to visual snow syndrome.
3) Date or age when your symptoms started.
4) Visual snow: what type (chose one):
- black and white (i.e. only black dots on white background, white dots on black background)
- clear (i.e. color of the background)
- flashing (i.e. always white, brighter than background)
- colored
- all of these
5) Other symptoms (please only answer yes or no)
- After images
- Trailing of images in the vision
- Blue field entoptic phenomenon (i.e. white squiggly lines moving pulsating on the blue sky)
- Floaters in vision
- Colored clouds or waves with eyes closed
- Flashes of light
- Impaired night vision
- Sensitive to light
- Tinnitus
6) Have you ever been diagnosed with migraine or have you had a headache of moderate or severe intensity in the past? ( Please answer yes or no)
7) Have you ever taken any illicit drugs in the past?
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A new article was published on Visual Snow. Please take a few moments to read. Awareness of our condition is always important as so few people still know about it.
https://www.theguardian.com/lifeandstyle/2016/aug/08/visual-snow-debilitating-eye-condition-doesnt-exist |
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A NEW Questionnaire-based study has started for Visual Snow Research out of King's College. If you wish to participate you can send the information below to Please provide the following information within your email:
Name
Address
Date of Birth (Day/Month/Year)
Telephone number
1) Please make a brief statement that you are willing to be contacted for research. This is a European data protection issue.
example:
"Yes, please keep my contact details and you may contact me for research purposes."
2) Brief description of all symptoms you relate to visual snow syndrome.
3) Short description of visual symptoms in own words:
4) Visual snow: what type (chose one):
- black and white (i.e. only black dots on white background, white dots on black background)
- clear (i.e. color of the background)
- flashing (i.e. always white, brighter than background)
- colored
- all of these
5) Other symptoms (please only answer yes or no)
- After images
- Trailing of images in the vision
- Blue field entoptic phenomenon (i.e. white squiggly lines moving pulsating on the blue sky)
- Floaters in vision
- Colored clouds or waves with eyes closed
- Flashes of light
- Impaired night vision
- Sensitive to light
- Tinnitus
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