Please follow a moment to follow this link for information on our current fundraiser for Eye on Vision! This is a fun way to support EOVF and treat yourself to something gorgeous for yourself, child, spouse or loved one!!! This will be ending tomorrow, so please click now!!!
|
|
Dear community, I am asking if you would kindly consider filling in my questionnaire regarding sensory perception and visual snow. At present I am a third year undergraduate at Sussex university and would like to help visual snow sufferers by contributing to research in the area. It also benefits the research area of brain connectivity. More information is given on the pages provided on this link: https://universityofsussex.eu.qualtrics.com/SE/?SID=SV_73959yicqGpRWGF Thank you for your time Katie McKenzie |
Happy Holidays!
We have a new email address set up for English speaking patients to write in to who would like to participate in the next phase of Visual Snow Syndrome research. Please note, that if you have already submitted your information it is on file with the doctors and there is no need to resubmit.
Please provide the following information within your email:
Name
Address
Date of Birth (Day/Month/Year)
Telephone number
1) Please make a brief statement that you are willing to be contacted for research. This is a European data protection issue.
example: "Yes, please keep my contact details and you may contact me for research purposes."
2) Brief description of all symptoms you relate to visual snow syndrome.
3) Short description of visual symptoms in own words:
4) Visual snow: what type (chose one):
- black and white (i.e. only black dots on white background, white dots on black background)
- clear (i.e. color of the background)
- flashing (i.e. always white, brighter than background)
- colored
- all of these
5) Other symptoms (please only answer yes or no)
- After images
- Trailing of images in the vision
- Blue field entoptic phenomenon (i.e. white squiggly lines moving pulsating on the blue sky)
- Floaters in vision
- Colored clouds or waves with eyes closed
- Flashes of light
- Impaired night vision
- Sensitive to light
- Tinnitus
|
We are reaching out to patients with visual snow to begin keeping a daily diary to track symptoms. There are no specific guidelines, but some suggestions might be to track how lighting conditions effect your VS, or how foods, activities, anxiety affect how much or how thick and fast your static is? No need to turn your diary in right now, just start keeping track. |
SEEKING GERMAN SPEAKING PATIENTS FOR VISUAL SNOW STUDY
Hello Everyone! I have really great news! The Munich IRB has just approved our study and the doctors are starting to recruit now.
They are working through the list of emails that we have received in the
last year trying to get in touch with as many patients as possible.
For
now, they have only approval for a German consent form - so in the
beginning, they will focus on German speaking patients, but the projects
in London are coming soon and then they will include English-speaking
patients. (This does not mean that you need to be from Germany or live
in Germany, but you do need to know how to read and write in German for
the purpose of the consent forms.)
For an
expedited contact, this email-address was generated and should be used
by the German speaking patients who wish to apply:
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
I
only have the English version of the initial questions, so I apologize
for that considering I'm asking for patients who speak German. I'm
hoping that many will speak both. Here is the information that will be
helpful for all GERMAN-SPEAKING PATIENTS to send along to the email
above.
Name
Address
Date of Birth (Day/Month/Year)
Telephone number
1) Please make a brief statement that you are willing to be contacted for research. This is a European data protection issue.
example: "Yes, please keep my contact details and you may contact me for research purposes."
2) Brief description of all symptoms you relate to visual snow syndrome.
3) Short description of visual symptoms in own words:
4) Visual snow: what type (chose one):
- black and white (i.e. only black dots on white background, white dots on black background)
- clear (i.e. color of the background)
- flashing (i.e. always white, brighter than background)
- colored
- all of these
5) Other symptoms (please only answer yes or no)
- After images
- Trailing of images in the vision
- Blue field entoptic phenomenon (i.e. white squiggly lines moving pulsating on the blue sky)
- Floaters in vision
- Colored clouds or waves with eyes closed
- Flashes of light
- Impaired night vision
- Sensitive to light
- Tinnitus
------------------------------------------------- I'm
so thrilled that this day has come. I have been working with the
doctors for nearly a year now to get this back off the ground. Thank
you to all who have applied. Remember, English speaking patients will
follow, but for now, only those who speak German, please apply.
|
Hello Eye on Vision Supporters!
There
is a small update on the visual snow research that I wanted to share
with everyone. It is in "scientific terms," so may be a little confusing
to those who are not familiar with the terminology. You can follow up
in the Visual Snow Research group on Facebook for more clarification
from the group if needed.
Hypermetabolism and Hypometabolism The research had not focused on hypometabolism in the initial study. This is
another kind of statistical analysis. When looking at hypometabolism, the researchers
found the right superior temporal gyrus and the left inferior parietal
lobe to be less active in VS than in controls. (This is considered a new finding)
More
importantly, the researchers found independent from the PET data that the brain
structure of VS patients differs very close to the hypermetabolic
area in the lingual gyrus. The
structural difference is really small (but significant). The researchers' finding are
from the GROUP-difference of VS and healthy controls and it cannot be
identified on an individual MRI…
However,
this is important to be identified since such structural and functional
congruence points to this area being relevant for VS.
The researchers (Schankin and team) believe that this underlines that the lingual gyrus is of particular importance for VS.
*** The next phase of research is set to begin in a few weeks!!! ***
Donations are always needed and appreciated through:
http://www.gofundme.com/visual-snow
and
http://www.eyeonvision.org
As
for our floaters campaign, our very generous anonymous donor made a lot
of people smile yesterday by donating $5,000 once the campaign reached
it's first $5,000. This brings us to $10,135 as of the time I'm typing
this email.
I will be hearing the details of Dr. Sebag's
research plan at the end of this month. This is groundbreaking research
for vitreous floaters. We are thrilled to be 1/5 of the way to our goal
of $50,000.
Would you like to donate and help get us closer?
*** Our donor has promised another $5,000 donation once we reach $15,000. Please help us get there! |
|
|
|
<< Start < Prev 1 2 3 4 5 6 7 8 9 10 Next > End >>
|
Page 3 of 30 |